teampinklilly

Ride for the Kids 2026

Lilly's story

- Lilly was 3 and a half at a childcare where we noticed she wasnt developing at her age 
- started therapies to help - was mostly non verbal and got an unexplained head injury at daycare so we pulled her out 
- Lilly had a second year at kinder (this time a session kinder) 
 - got a diagnosis of intellectual disability and started at a special school 
- in this time we also got a diagnosis of 2q deletion syndrome which at the time only effected her (ID/ASD) 
- term 2 2022 we moved to the country and trialled mainstream school 
- by term3 Lilly was in the special school next door - 2024 she started having noticable absences... (then absent and shaking - we got a diagnosis of myoclonic epilepsy
 - lilly has had 4 EEGs, 2 MRI's and many of blood tests in her journey 
- Lilly experiences multiple types of siezures Absences, atonic, tonic clonic, myolclonic 
- we are not yet controlled but we do have a diagnosis of lennox gestaut syndrome which has opened us up to more treatments. 

 - Brainwave has helped us along the way since our diagnosis of myoclonic epilepsy 
- they have provided us with siezure alarm.for night time for peace of mind 
- allowed us to go on a family camp.where the girls.and I got.to spend some much needed time together not in a hospital setting
 - they have offered cibling days for her older sister to go spend a day of fun away from.the medical stuff. 
 - in school holidays Lilly got to go to the werribee zoo funded by brainwave... and even though she had a seizure while on the safari bus we were supported the whole way through. 

 Brainwave has been one of our core and essential.supports through this journey and thats why I am riding 100km in october to raise funds for other families also needing support through thier child's diagnosis/brain disorders.

We’re riding this October to fund therapy, vital equipment, connection and moments of joy for over 1,600 Brainwave children living with brain disorder

On average, 10 children a day in Australia are diagnosed with a brain illness or injury – life-changing conditions like epilepsy, stroke, cerebral palsy, brain injuries and rare neurological disorders. That’s more than 3,000 families every year, suddenly facing fear, uncertainty, and overwhelming challenges. Brainwave Australia is the only national charity dedicated to walking alongside these families.

This October, we’re riding to raise funds for critical therapy, essential equipment, emergency support, and moments of joy for over 1,600 children supported by Brainwave. From hospital packs and mobility aids to family camps and connection-focused care, your support helps families feel less alone and more equipped to face what lies ahead.

Your donation is more than a number – it provides tangible support for families navigating a child’s brain disorder. It helps fund therapy, essential equipment, and access to programs that bring hope and connection when it’s needed most. Support our team and help us ride for brighter futures. Together, we ride.

Thank you to our Sponsors

$163

Anonymous

$150

Les Sutherland

The rest of my donation, didn't go through the first time!

$56

Les Sutherland

Lots of love :-)

$34

Claire, Amit, Kayan

PROUD of you guys!

$29

Bob Wijnschenk

Wishing you all the best for such an important cause. You’re a great mum.

$12

Sally

$6

Kay Wilhelms

$5

Anonymous

$5

Anonymous

$5

Anonymous

$5

Anonymous

Good luck with the riding and fundraising!

$5

Anonymous

Good luck with your riding and fundraising goals.

$5

Anonymous

Good luck woth your ride and fundraising

$5

Anonymous