Our Team Progress
1459.73 KM
1000 KM
Front Page News! The Advocate NW Tasmania Wed 8th October
Ch9 News starring Millie, Gareth & the awesome Jack Mannix!🚴♀️
WynActive Fundraiser this weekend!
Our Story - Why We Ride this October
Meet Amelia! Amelia is 7 years old and lives with her family in Werribee, Victoria. She is funny, adventurous, couragous, inquisitive. She lights up around people and loves school! Her favourite things include puzzles, boardgames, baking, riding her bike, bouncing on the trampoline, painting and drawing, taking photos on her iPad, music, the beach, swimming pools, Bluey, The Wiggles & Paddington Bear. Most of all, she adores her big brother, Ollie!
In January 2019 our world was torn apart when Specialists advised our beautiful 5 month baby girl had been born with complex brain malformations. It was a normal, uneventful pregrancy & at this stage she was hitting all of her “milestones” so this revelation came as a complete, catastrophic shock. Our lives imploded, dreams & goals for the future changed in an instant. Each day now consumed by early intervention therapies, medical appointments and hospital admissions as epileptic seizures took hold.
5 years down the track we finally received Amelia’s genetic diagnosis of TUBA1A-related Tubulinopathy. Amelia’s TUBA1A variant has caused Lissencephaly type 3, Cerebellar Hypoplasia, Complete Agenesis of the Corpus Callosum, Microcephaly et al. This in turn has resulted in epilepsy, global developmental delay, intellectual and physical disability.
TUBA1A is ultra rare, with less than 20 other known cases in Australia, approx 500 globally. Amelia’s particular variant of TUBA1A, we know of only 2 other children world-wide. Due to there being such limited knowledge around TUBA1A, the prognosis is unknown, there is no known cause and no cure.
Every day we get to share with Amelia is a blessing and she fills our hearts with so much joy. Her spirit and determination is infectious. Her diagnosis however also brings overwhelming grief, stress & isolation that can only be understood by other families living a similar path. Life can at times feel daunting and the impact on a family’s mental health is immeasureable. This is where Brainwave has become such a vital source of support to us.
Brainwave has given our family the opportunity to have experiences and respite we wouldn’t otherwise get, in a supportive, understanding, and inclusive environment, especially without fear of judgement. Over the past 18 months we have attended Camp Brainwave, Luna Park Christmas Parties, Mum’s Night Paint & Sip, Gumbuya World Family Day and a Werribee Zoo Family Day.
These events create a space for Amelia to try new things, for her brother to form and strengthen friendships with other young carers, and for us to relax, laugh, and simply enjoy the moment. Through these events, we have met so many beautiful families and built new friendships.
Riding for us is about inclusion, raising awareness of brain conditions, and giving back. Brainwave is such an incredibly important organisation, we hope to raise funds that will enable them to continue their amazing work in supporting other families through funding therapy, equipment, hospital support, and family connection for children like our Amelia.
Amelia is participating in this year’s Ride for the Kids along with her team on her adaptive trike. If you do see her out & about, riding along Werribee River or down to Watton Street for a hot chocolate, please come say ‘hi’ & cheer her on!
Thank you to our Sponsors
$520
Gareth Davies
$520
Kate Jensen (spirit Of Tasmania 1)
On behalf of crew from Spirit of Tasmania 1, such a great cause to support!
$211
Odran Floyd
$211
Jonathan Carstens
Good luck with the ride for a very good cause.
$211
Bev & Geoff Wood
Two very proud grandparents — Millie you are a champion
$211
Intrepid Travel
Proudly supporting Ride for the Kids and Brainwave Australia
$211
Bev & Geoff Wood
Ollie - you are a wonderful brother and support for Millie Mee Mee & Grandi
$211
Intrepid Travel
Proudly supporting Ride for the Kids and Brainwave Australia
$137
E
Enjoy the ride!
$137
Lee-anne Armitt
Good luck to Millie and her bike squad!
$137
Michael Frith
$137
Robert Wood
Go Millie, you little rockstar!
$127
Anna Izgi
All the best to the team
$127
Anna Izgi
Go Ollie, you're a wonderful big brother
$109
Adrianne Walker
Love from Age, Andy & Freddie (NZ) xxx
$106
Julie And Wayne Thomas
Good luck with your ride, Millie, you little champion.
$106
Helen Opie
Wishing you the very best for your bike ride Millie. Go girl.
$106
Pru Francis
All the best to Amelia and her cycle sqaud.
$106
Anonymous
Great work Gareth and family. All the best to Millie and the team for the bike ride
$106
Marilyn Davies
Enjoy the day Millie xxx
$106
Michael Matthews
Wishing you all the best on the day and our love always x
$106
Martin Matthews
Good luck Millie and all the team x
$106
Kate Cordell
With lots of love from Kate, Tilly and Charlotte x
$106
Soknai Nguyen
$106
Nick Fry
What a wonderful thing for you all to be able to participate in - smash it team Davies xxx
$106
Sushma Gadde
Sending best wishes and prayers your way dear Milli and family <3
$106
Chris Yianna
Best wishes to Amelia and the team!
$106
Damaris Delgado
Great job 👏
$106
Steve And Michelle
Good luck from The Cunningham’s.
$106
Geoff & Bev Wood
Uncle Micky — we are proud of your Tasmania Trail bike ride for Amelia in incredibly bad weather
$106
Intrepid Travel
Proudly supporting Ride for the Kids and Brainwave Australia
$100
Sean Blanchard
$100
Pete Thompson
All the best Amelia and Team Davies!!
$100
Menzinators
Go Mick!!!! Do it for the kids xxx Love Brett and Bron
$100
Michelle Wade
$93
Glen Mcneair
Have a great ride for a great cause .
$73
Cam
$55
Natalie And Lorna
Good luck Ollie love you. Lorna and Natalie xxx
$55
Natalie
Good luck Millie. Love you. Lorna and Natalie xxx
$54
Christine Tiernan
Thinking of you in your quest x
$53
Tuisha Purewal
$53
David Rice
Best wishes for achieving your goals,
$53
Judy Cook
$53
Ann Cassar
Go Millie!
$53
Val & Mick Sweeney
You are a real Champion Millie
$53
Paul And Marylin Jacques
$53
Graeme Milburn
Go for it Millie - you Champion
$53
Greg Huter
Great work Gareth.
$53
Anonymous
All the best for the ride!
$53
Rachel Ong
Inspired by your story and your strength. All the best with the ride, Gareth — and to Brainwave for their wonderful work.
$53
Ruchika Wali
Best Wishes!!
$53
Marie Brennan
$53
Marie Brennan
$53
Alka Vijayan
More power and strength to Amelia and team. Cheering for you.
$53
Ann Lee
$53
Vonny
Go Millie :-D you're an inspiration
$53
Bert Rebelo
$53
Denise Aislabie
Good luck to you Millie and the team on your sponsored cycle ride xx
$53
Sally And Ian Aislabie
Have a good day Ollie, look after Millie lots of love Sally and Ian xx
$53
Tracy Piggott
Smash it Millie
$53
Alan & Janette Aislabie
Good luck. Love Janette & Alan
$53
Alan & Janette Aislabie
Good luck Mate love A&J
$53
Will Yuncken
$53
Tim Strahorn
Great cause!
$53
Niall Kirwan
$53
Anonymous
Great work Gareth and family. All the best to the team!
$53
John Shiels
$53
Leon
$53
Larry Rizzman
$53
Dave Goldfish
$53
Róisín Cahill
$53
Shane O'sullivan
Go team!
$53
Carole Love
Go Team Amelia xx
$53
Sare Yilmaz
Good luck <3
$53
Chris Finnegan
$53
Cheryl Luther
All the best, lovely Amelia, & your beautiful family.
$53
John Englund
$53
Warringa Park Admin Ladies
Well done Amelia and your team! You’ve made the team in the school office very proud!
$50
Leeann Cook
Go team! 👏 woohoo!!
$50
Libby Knights
Go Millie Mouse!! So proud of the Davies family for making a difference and Amelia not letting barriers prevent her.
$50
Scott L.
Good luck Amelia!
$50
Sally And Ian Aislabie
Good luck Millie we know you can do it lots of love Sally and Ian
$50
Ansar Sherif
$50
Michael And Michelle Blanchard
Good luck Amelia!
$50
Anonymous
Wonderful
$50
Anne & Paul Groves
$41
Tt Ton
You go girl! Rooting for you Millie
$32
Goran Lucev
Good work mate!
$28
Shelley Harris
What a fantastic effort from you all! Great work! Sending lots of love, Shelley, Mark, Josh and Sophie xxx
$26
Kate Rubenach
❤️
$26
Denise Aislabie
Well done Ollie for the support you give your little sister.
$26
Anonymous
$26
Marilyn Davies
Well done Millie xx
$26
Marilyn Davies
Well done Gareth on starting your October bike ride
$26
Alex And Tia Rubenach
$26
Bonney
$26
Marilyn Davies
Well done Ollie xx
$26
Marilyn Davies
Well done Catherine xx
$25
Katrina Bester
So lovely to see you riding to support your niece and others. Love the photo of you and your niece
$21
Patrick Gauci
$21
Heather Worby
Go you guys x
$21
Anita Dow
$21
Tom Hatswell
Well done to you all and we hope you have an amazing time! With love from Tom, Kelly, Mia and Ruby xxxx
$21
Tom Hatswell
Dollars schmollars!!!
$21
Lee - Nrahn
All the best to Millie & family Lee NeuroRehab Allied Health Network
$21
Katrina Gauci
$16
Lidia Cammarana
$15
Lesley Norris
Good luck on your ride! Love you xx
$11
Oliver Davies
$11
Intrepid Travel
Proudly supporting Ride for the Kids and Brainwave Australia
$5
